Saturday, October 13, 2007

HAPPY ANNIVERSARY, LIZA!

(Self portrait by Liza Cowan, copyright hers 2007)

This night one year ago, I wrote my first e-mail to Liza Cowan.

I knew of her for at 30+ years, and her influence on my life had been intense. As one of the founding voices of Lesbian-feminism, her courage and clarity had helped bring me to similar attributes. And, I'd written her decades earlier, when she and Penny House were co-editing DYKE: A Quarterly. I was living in a Lesbian land collective that subscribed to DYKE, and we'd noticed their publishing name was Tomato Publications. We'd had discussions about why that name -- it certainly wasn't from the sexist term for women, because Liza was one of the language pioneers helped us unravel gender role conditioning.


Eventually, I sat down and wrote her (circa 1978), posing the question: "Why Tomato Publications?" She wrote me a postcard back that began "Why not?" A familiar humor, now. Then she explained they'd read a national study which said that men's favorite vegetable was cucumbers, while women's was tomatoes.

Somehow our physical paths never crossed in all that time, although they could have more than once. She remained an influence across a distance. I often wondered what she was doing now.

In June of 2006, I began writing what Liza has called the Great American Lesbian Novel. Since the main character was based on me, I gave her the same connection to Liza that I had, and you can't write a novel about politically-active and culturally-revolutionary 70's dykes without mentioning Liza Cowan more than once. Some time during that summer, I found out that Alison Bechdel was having an art show at a gallery in her town of Burlington, and when I investigated it, I discovered the gallery was owned by none other than Liza. Now I knew what she was doing. I found the Pine Street Art Works website and munched my way through it, then went on to Liza's personal website and discovered her art.

Which blew me out of the water.

In August, partly as an antidote to extreme isolation and personal difficulty, I did something I never had before: I posted a comment to a blog. It was in response to attacks on Lesbian cultural institutions and to some really shitty thinking about children, both of which I found impossible to ignore. I was attacked, then defended, then found a small but growing online voice. In the course of that thread, Liza posted -- not about the main topic, about something else, but it was clearly her. Kinda cool.

I've been a leader since I was a teenager, and an artist (writer) for longer than that. I really despise the American cult of celebrity, how people fawn on those who have fame and a certain kind of ability. I find it self-disempowering and just plain icky, especially if I'm on the receiving end. If you want a relationship with me, ask for it, and accept my no if that's what you hear. If you want to fantasize about me, I don't give my consent. And if you don't have a personal relationship with me, trust me, you don't know me through my poetry, my other writing, or my activism. You know only those aspects of me.

I have demons and damage. I also pretty much like myself just fine, but the reasons I like myself are not necessarily what you'll see from my public persona. So I don't indulge in being star-struck, and I don't let others aim it at me. It's really easy to discourage, if you're honest and not passive-aggressive out it. And, of course, if you don't secretly crave it.

So I was reluctant to write Liza what I wanted to write her, which was basically, how the hell are you? How's it been for you the last couple of decades, as we've seen our movement revised, reviled, lied about in every possible way, and still they can't shut us up or kill us off? Mostly, I wanted to know if she was happy, what she was thinking about, and how she was expressing herself. It mattered to me.

I also wanted to tell her how much her work had meant to me and my life, because I think every artist and leader deserves to hear that in a non-adulatory way. But I had to make sure I wasn't coming from a place where there were any strings attached. Just a "thanks" was appropriate, I felt.

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Friday, October 12, 2007

IMAGINE MY SURPRISE


When I awaken to start my day, after I fire up the rockets on my PC and hit warp DSL, the first thing I do, of course, is visit Emailandia. Then spam dump. Then, most of the time, I hop on over to Orcinus or Group News Blog.

Partly this is because the two blogs I write for have a notification feature so if someone has posted a comment, I've been informed by email. And if I want to answer, I need to think about it a bit.

But mostly it's because what's a-hoppening at Orcinus or GNB is going to engage multiple layers of my brain, not just the political gecko but also my wobbly g*d interface, my funnybone, my "whoa I hadn't thought about that" child wonder, and my human gang loyalty. All at once. Their snark doesn't make you laugh meanly, and they have kickin' graphics.

I like waking up to my Lieutenant Ellen Ripley persona. Ripley rides my perimeter.

"I thought you were dead?" "Yeah, I get that a lot."

See, here's the scoop about me:

I don't take the pain meds prescribed to me. I don't smoke, drink alcohol, or use drugs. I drink caffeine once a day, if that, and chocolate maybe once a week.

I don't use terminology that others have told me is oppressive. When someone confides in me the ways in which they hate themselves, I am not persuaded that they are right in their self-doubt. I listen to children, always.

I have forgiven the people who failed me and tortured me as a child. I have forgiven myself for allowing them to fail and torture me.

I sleep eight to ten hours a night, when possible. I mute commercials. I buy halogen bulbs and brown eggs. I let myself cry.

When I masturbate, I don't fantasize about anyone I've ever known, even someone I haven't known personally. (Because I don't have their consent.)

I resist being pissed at g*d. I write my whole truth, but my ethic insists I try to inject balance and hope into it.

Somewhere early on, I decided to stay present, to move through this life awake and alert, and mostly I've stuck to that decision. Yeah, there were those episodes of leaving my body when he was lying on top of me, when I was 9, 10, 11. And a few tries at getting stinking drunk as a teenager. But those flights never became habit.

More than one person who believes in past lives have told me I am an "old soul" and that this is my last time driving down the block, this existence. First of all, I don't know how they can tell such things -- is there an expiration date stamped on my aura somewhere? And second, it's sad to contemplate. I like being alive and in a body. Yes, the ways we are oppressing each other is horrendous. Yeah, pain sucks. But being able to draw breath, to notice light and shadow, to feel air on the hairs of my arms, to speak a sentence out loud, to have a child climb confidently into your lap, to make pan gravy and then it over fresh biscuits -- heavenly. I want every second of it I can get.

As Terry Galloway once said, "It's a good life, if you can stand it."

My long-ago mothers left the trees and caves, exposing their small, fleshy bodies to savannah risk, building houses of clay and straw, planting grain, inventing grammar and nouns in unending torrents, and I feel like I owe it to them to keep on truckin', evolutionarily-wise.

So anything that bring out Ripley in me is a drug I allow myself. Those two blogs are Ripley friendly.

You can perhaps imagine, then, what it felt like to discover two posts referencing my recent post here about "My Knees, Part Three" and "Crip Ward Tango" -- amazing, eloquent posts, quoting me at length and going on from there to make dazzling connections. By Jesse Wendel and Sara Robinson (who writes for both those blogs).

Like Jesus, I wept.

What can I say? KTHX doesn't really cut it. I could sing something I bet Sara's heard often, "Here's to you, Mrs. Robinson, Jesus loves you more than you will know", wo-wo-wo. But then what would I sing to Jesse -- "I wish I was Jessie's girl..."? Alas, I'm an unreconstructed bulldagger. And I don't believe in the divinity of Jesus.

Still, sloppy smooches to you both. Let's keep cross-fertilizing, shall we?

And ya'll, go read the posts there, give 'em some sugar. While you're there, be sure to read the Are You Saved? post and follow the link back to Sara's article at Orcinus about the good news for modern (hu)man. I was going to write about it, but she beat me to it and, as usual, did an awe-inspiring job.

See ya at the sockhop. Bring yr flamethrower.

THE BRAIN OF A POET


(Image from a card at the marvelous Anne Taintor)

Hiya, beauties. I'm working on another post, but in the meantime, here's a nifty little bit of online fun: Test whether your brain is Right Brain or Left Brain. I turned out to be Left Brain:

LEFT BRAIN FUNCTIONS
uses logic
detail oriented
facts rule
words and language
present and past
math and science
can comprehend
knowing
acknowledges
order/pattern perception
knows object name
reality based
forms strategies
practical
safe

And after the fold is a sequence of thematically related autobiographical poems, including my favorite I've ever written (the last). Enjoy this autumn day.

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Thursday, October 11, 2007

BROAD CAST 10 OCTOBER 2007

(Ripley and Newt from "Aliens")
Just a couple of interesting things to share today, scouts.

What American Accent Do You Have? Take the quiz and let us know. Mine was:

What American accent do you have?
Your Result: The South

That's a Southern accent you've got there. You may love it, you may hate it, you may swear you don't have it, but whatever the case, we can hear it.

The Inland North
The Northeast
Philadelphia
The Midland
The West
Boston
North Central
What American accent do you have?
Quiz Created on GoToQuiz

And for the record, I DO love it.


I woke up today with a piece about Ginny and Myra being Grammas in my head, part of Book Two (even though I'm not finished with Book One). I gave in to the inevitable and wrote it down, feeling that old familiar serotonin rush. But later I realized some of the impetus may have come from reading this article in Broadsheet at Salon.com yesterday, about the value of grandmothers. They reference a New York Times article Evolution's Secret Weapon: Grandma and say:
"Today many women feel marginalized once they reach menopause. But research suggests that far from being a burden to societies, grandmothers have played an important role in the evolution of human longevity. Studies of modern hunter-gatherers in Tanzania, Venezuela and Eastern Paraguay — societies that offer insights into how humans evolved — consistently show that Grandma is doing much of the work.
Researchers have even measured the muscle strength of men and women in these communities and weighed the baskets and bundles carted around by them. Often, the scientists find, women in their 60s are as strong as women in their 20s. 'It’s the women over 40 who are carrying the heavy loads,' said Dr. Kristen Hawkes, anthropologist at the University of Utah."

I was reminded of the great, not-at-all-kidding essay by Ursula K. LeGuin about how governments should be turned over to old women, if we want to survive as a species, and her quote from one of the Earthsea books, “Old women are different from everyone else. They tell the truth.”

Congratulations on your impending grandmotherhood, Shadocat. Molly Alice chose well which family to enter.

Tuesday, October 9, 2007

MY KNEES -- PART THREE, AFTER THE SURGERY

(Maggie performing "You Know You Want Me" in rehearsal for Actual Lives show at Southwestern University; photo from American Statesman, 2004)

When I left the rehab unit for the first time, riding in the car sent me into hysterics after a block or two. The visual input of passing scenery was more than my brain could handle. My friend driving had to pull over until I could stop my shuddering. I rode the rest of the way with my eyes closed. That settled the answer of when I'd be able to drive: Not anytime soon.

A friend went out and bought me a phone that flashed lights as well as rang, so if I was in the same room, I'd know when a call was coming in. She helped me program the memory, to autodial numbers for me. I began slowly telling people what I'd been through. Too many people insisted on telling me that I sounded just the same as always, as if that was reassuring. But the point was, I'd looked the same, sounded the same, yet inside my head, severe damage had occurred. I'd always lived by my wits, my intellect, my extraordinary memory. This was much, much worse than losing the ability to walk. This was my ultimate nightmare.

And not a single person I knew who had seen me had noticed what was going on. It punched every isolation and abandonment button I'd ever had.

I didn't qualify for in-home help, so I was getting by with the assistance of friends (a single visit a day) and pushing myself to do as much as I could. I was scheduled for at-home physical therapy and a visiting nurse twice a week to begin the following week. The second day I was out of rehab, I went back to my surgeon's office for a follow-up visit. He wasn't much interested in hearing about the difficulties I'd had. He kept saying they were "routine side effects" and the point was, the knee replacement was a success.

It was time to take out the staples over the massive incision on my left leg. They'd held through all the vigorous physical therapy, despite being stretched very tight, and now they were starting to itch and get red around them. Pulling them out didn't hurt at all. I then walked with my walker to the x-ray room, managed to get up on the table and get a set of films made, and walked back to the exam room.

When I sat down again on the exam table, I noticed a small hole in one part of the incision, above the knee. I told my friend to get the doctor, immediately. It was a deep hole, I could tell. The surgeon and Patrick came back in, and as I sat there, I watched my incision re-open to a length of five inches and a depth of two inches. I could see almost to my bone, deep inside my thigh..

I was numb. I couldn't believe this was happening. The surgeon called it wound dehiscence and said it was common in people who keloided with scars. Then he left the room. Patrick stayed with me and explained a little more. He said they couldn't close the incision again because of the risk of infection. It would have to "heal by secondary intention", which meant from the inside out. It would take months.

I suddenly remembered all the reading I'd done about Captain John Oates, a member of the ill-fated Scott Antarctic Expedition. Oates had been injured by long bullet wound during the Boer War, and this was in the days before antibiotics. The standard treatment for flesh-opening wounds in those days was to keep the patient still and clean, and let the wound heal by second intention. It had affected his military career, which is part of why he ended up volunteering for polar exploration.

However, one of the signs of advanced scurvy is the body's failure to create or replace collagen in skin tissues. Collage requires vitamin C for manufacture by the body. And all scars are almost pure collagen. Thus, in end-stage scurvy, every scar you've ever sustained re-opens as if the wound had never healed.

This is what occurred to Oates on the trek back from the South Pole, as the men were hauling overloaded sledges whose design was deliberately not like Inuit design -- because Scott believed there was something "lofty" in Englishmen refusing to listen to native technology and somehow pushing their way through obstacles with brute obstinacy. According to Scott, when they were stopped by a blizzard and it became clear once the weather improved, Oates would not be able to continue marching, Oates sacrificed himself by leaving the tent during the blizzard so that the others could go on without him. His body was never found.

There is some doubt as to the veracity of this story.
(Captain Oates going into the blizzard to die, colored print of painting by J.C. Dollman, 1913)

Yep, I actually thought of all this as I sat there looking down into the innards of my thigh.

Patrick put a light bandage over my opening and told me not to dress it further. He said I would now have to go to Wound Care, which is a speciality dealing with post-surgery problems. Unfortunately, I couldn't get in until the next day. He told me to stay as still as possible, not get the wound wet, and go to Wound Care, they'd explain the rest.

The friend who had taken me to the doctor visit had spent most of the visit at the window, looking outside, once my leg had opened back up. She couldn't handle what was happening to me. She took me home and left.

Another friend, a nurse, agreed to take me to Wound Care the following day, back at the same hospital where I'd had my surgery. I had a wheelchair by now, and this made getting into the building possible.

Wound Care is often performed by nurses, PTs and other non-doctors who do it as overtime, to earn extra pay. To my shock, when I got into the exam area, I saw that the woman seeing me that day was the physical therapist who had tried to work with me shortly after my surgery, when I had mutely refused to cooperate. She had yelled at me then, telling me if I didn't work to get better, I'd be a cripple all my life, and she had added it was clear I was accustomed to being lazy -- referring to my weight. I had not been able to say a word in reply, and no one was with me to intervene on my behalf.

So, when we saw each other, recognition mingled with profound dismay on both our faces. But I am nothing if not brave. I said "I want to tell you, I'm sorry I couldn't do PT that day and that I couldn't explain why." I told her what had been going on. My friend, the nurse, listened and jumped in to add that I was the hardest worker she'd ever seen, it was definitely out of character for me to be hard-assed or ungrateful.

To her credit, the PT believed me instantly, apologized for going off on me, and, awkwardly at first, we began the training.

The point of Wound Care is to keep you from having to be in a medical facility while wounds heal. Which means the training is to enable you to stay at home and do the work of nursing yourself. Well, usually it's done by a caregiver (like a family member) at home with you. Since I didn't have anyone like that, it was going to be me.

Her tone of voice and manner was completely different from what it had been before. She was kind and respectful as she helped me get through my horror and revulsion. I had to use long Q-tips to reach all the way inside my wound, every nook and cranny, and clean it with saline thoroughly, exerting some pressure. No alcohol or betadine -- the health of my wound would depend on how well I could clean it with saline. I learned there are no nerve endings below the epidermis, thus, no pain or even strong sensation. I learned what the various kinds of flesh and muscle I was seeing were, and how to recognize signs of beginning infection, including the sniff test. I was put on oral antibiotics, given a box of cleaning supplies, told to never get it wet or cover it with more than a light bandage, and I was done. On my own from here on out, except for weekly checks by the visiting nurse who would only inspect, not do the work for me.

But telling my story to that PT, and hearing her understanding and respect, had been my first act of redemption post-surgery.

Two days later, Bea told me she was starting work as an intern for a week-long program directed by Terry Galloway for disabled people to write dramatic pieces and perform them at the end of the week, page to stage in one week. It was called Actual Lives. Bea offered to drive me there and back each night.

(Terry Galloway; photo by Kenny Braun for the Austin Chronicle)

I knew of Terry Galloway, adored her plays and thought (then and now) that she is a genius. I wasn't sure I qualified as disabled (ironic, I know) but I agreed to go. It turned out to be the saving of me, although that first night was unbelievably hard, emotionally and physically. I wound up peeing on myself in my wheelchair because I still had lousy bladder control (only recently off a catheter), though no one but Bea knew. My homework was to write a few lines, at most a paragraph, for the next night that Terry would help us edit and turn into a performance piece.

When I got home and managed to change my pants by myself, I went with my walker to my computer and turned it on. The first time since surgery. I couldn't write long-hand, not legibly, anyway -- I still couldn't sign my name, a friend was signing my checks for me to pay bills. I remember sitting at that blank screen on the page for two hours, trying to force my brain into creating sentences, then struggling to remember how things were spelled. I finally managed three lines, I think. I printed it out and went to bed, exhausted.

My initial contribution to Actual Lives, that first performance, was negligible. A few people picked up on me and we bonded, and Terry definitely zeroed in on me. So I kept going. Over the next four years, it was my chief source of writing encouragement and disabled activism outlet. Terry mentored me thoroughly, and I went on from there to be mentored by Sharon Bridgforth with her Finding Voice program. By that time, I was a daily writer, producing work that I felt was up to my potential and steadily honing my craft.

(Actual Lives ensemble at H Street Theater, VSA International Arts Festival, Washington, DC, June 2004)

Back to September of 2000, however. I had to take extra, unpaid time off work because I wasn't able to return to my job for several reasons. Five weeks post surgery, however, I drove myself in cautiously and pushed into my place of work in my wheelchair. It was then I was informed by a new boss that I was being let go. They had found some other excuse to terminate me, something that dodged the disability claim, and I was too stunned to fight it. They assured me I could get unemployment right away.

I went home and wondered how on earth I'd find another job. My ability to learn had been hammered. It was, in fact, a year before I got another job, despite non-stop effort on my part to heal my brain and body, and become employable again. During that time, I ran through unemployment and my small 401-K.

In the 18 months following surgery, here's what happened in my life, in more or less chronological order (cue the country and western song music):
Lost my job
Had PT slowed down because of the open wound
My little brother Bill died suddenly and badly at age 42
My two favorite aunts, the only family members I'd considered family aside from Bill, died suddenly
Three of my cats died suddenly and badly, including my Cats of Cats Alice
One of my oldest and closest friends died suddenly
At least half a dozen of my regular friends stopping calling or making dates with me
Bea ended our relationship, saying I had too many emotional expectations of her

(Alice Booboo the Manx, Cat of Cats, 1997)

And -- my surgeon claimed I owed an extra bill of $3000 because Patrick had assisted at my surgery and he wasn't covered by my insurance. I said I hadn't consented to paying an out-of-pocket assistant, demanding they turn up a signed consent form from me. When, after weeks of harassing phone calls, someone in his records office, a lesbian from the sound of her voice, confidentially informed me that was no such consent in the records, I told them they had to either put up or shut up. In response, he terminated my care at his office.

I've tried to get my medical records from that hospital twice, but they can't seem to locate them.

Going on during this time, also, was a second medical issue, that of my polycystic ovarian syndome, a profound hormonal disorder that had left me with uterine polyps and dysplasia that had once been labeled cancer, though that path report was overread as non-cancerous by someone from Johns Hopkins. I was having uterine biopsies every six months. When yet another biopsy turned up some dysplasia, I was referred to a surgical oncologist who told me I had to have a hysterectomy.

After examining me, she said it would have to be an abdominal hysterectomy, not a vaginal approach. I told her about my wound dehiscence issue, and she paled a little. She said the chance for infection would be over 50%, then, meaning infection of my abdominal cavity, and that I would have to lie flat for perhaps six months in order to let the incision heal by secondary intention. I said that was out of the question -- I'd never walk again if I stopped moving at all, and I had no job, no health insurance, no disability coverage. She said surgery was the only option and left the room.

So I took my care to Nancy Crossthwaite who does alternative energy work. I began having regular monthly periods (lack of periods is why the dysplasia occurs) for the first time in years, and I became determined to wait out the surgery until I reached menopause. After menopause, the risk of uterine cancer would dramatically decrease. I seem to be in menopause now. I'm still living with my fingers crossed.


I began developing arthritis in all my joints, and went to a rheumatologist. As part of his work-up, I was referred to a podiatrist for my increasing foot and ankle pain, and to a neurologist for a tremor in my hands that was beginning to affect my handwriting (an ability which had returned, eventually).

The podiatrist took a series of x-rays, came back in the room, put them up on the lightbox and put a poster of normal feet next to it. Then she came to stand beside me, her arm over my shoulder. I knew this routine.

Turns out, it wasn't just my tibia with deformities. My feet were unbelievably wrong. Plus, my ankle joints had absorbed as much punishment from the crooked tibia as my knees had. The left ankle was not as bad as the right, likely because for four years I'd now had a straight leg on that side. There was no surgical option for these issues. Not walking would be a good idea, she said.

I told her that Bill had worn braces on his feet as a baby and described them. She recognized them as an attempt to correct the same problems as I had with my feet. She was raised in Croatia, and knew about older forms of medical treatment. She looked me in the eye and said "But they didn't notice your feet, huh? Because you were the girl."

I could only nod.

She asked if she could bring in other doctors and trainees at the clinic to look at my x-rays, and I said okay. I listened to their amazed responses; no one had ever seen anything like it.

I got to choose the neurologist I was referred to, and I selected a woman whose dictation I had transcribed, Dr. Reading. I liked the tone of her voice when she talked about her patients -- kind and respectful. It turned out to be the best medical consult of my life.

She went through everything, not just the tremor (which she diagnosed as benign and not likely to progress, not needing treatment). It was a long, increasingly intimate conversation we had. She tested my memory and every aspect of my neurological function. She told me that she'd once had as part of her test of a patient's general knowledge in the mental status exam a question which said "We were attacked on 9/11 by terrorists whose leaders resided in a particular country, and we then attacked that country in response. What country was that?" She said at leat 50% of patients answered Iraq instead of Afghanistan. She called it a mass delusion.

After that, I felt like I could trust her with the story of how my brain had been affected. I'd stopped talking about it, because my friends tended to not believe I had a residue -- my memory had been phenomenal before the surgery, and it was still excellent. Though not what it had once been, and I definitely was getting the message from people that I shouldn't have feelings of loss about that, seeing how high-functioning I was.

But Dr. Reading got it. She encouraged me to keep taking it to therapy, because the loss was real and, at this point, four years later, likely permanent. She also said she was certain, from the clear and intricate description I was able to give her, that I had had an episode of anoxia during surgery, a loss of oxygen to the brain. Not enough to kill me or cause serious brain damage, but enough to hammer me good and affect my kidneys. She said she was sure it was this residue I had struggled with, more than the morphine, although she agreed the morphine had played a role as well. She said in the future, if I had surgery, to tell the anesthesiologist I had had anoxia and they would be diligent in trying to keep it from occurring again.

I cannot express what a difference this made.

So, here I am now, seven years post surgery. My right knee is starting to fail, with an old familiar pain beginning. My left knee internal hardware slips sometimes, I can feel it. My thumbs, shoulders, and neck joints ache frequently. My left foot swells when I don't stand enough, but walking is now impossible without something to lean on. I'm on daily Celebrex, which makes a profound difference in inflammation and stiffness but carries a serious cardiac risk. I am more isolated than ever, in terms of seeing other people or getting physical help. I work at home via telecommuting, the last possible job I could get and it's not paying me enough to actually get by -- but the benefits are excellent. I don't take pain pills, unless I have an ovarian cyst rupture, which seem to have stopped occurring with menopause. I have nursing home insurance that will pay $3000 a month for three years, when and if I reach that point. It's enough for a decent place, though likely not a private room. Which means my writing will come to an end, because I need a great deal of solitude to write.

What is going well, exponentially so, is my writing. And my happiness with myself, no small thing. And a few old and new friends who manage to stay close, really close, via phone and e-mail.

My final performance was Actual Lives included a finale for the entire troupe that I wrote, using the music and structure of the Jailhouse Tango scene from the movie Chicago. This piece, "Crip Ward Tango", became the break-out hit of that entire international disabled gathering in D.C., and was referenced in the closing remarks as a stellar example of what disabled art could do. I heard strangers at the conference walking around singing it the next day. The first verse/character is me, based on my life. The next three were based on getting to hear the real stories of three of my colleagues in Actual Lives: Adam Griebel, Terri Stellar, and Terri Lynn Hudson. I dedicate it to them here. Tango on.
(Actual Lives finale performance at H Street Theater, International VSA Arts Festival, June 2004. L to R: Gene Rodgers, Adam Griebel, Danny Saenz, Frankie Ramont, Mike Burns, Maggie Jochild, Laura Griebel, Cindy Massey, Terri Stellar, Rand Metcalfe, and Jeff Marsh)

CRIP WARD TANGO

(Main performers in D.C. were Maggie Jochild, Adam Griebel, Terri Stellar, Jeff Marsh; live musical accompaniment was to tune of "He Had It Coming" in Cell Block Tango scene of Chicago. Maggie in regular chair with walker; Adam fully mobile but clearly brain-injured; Terri in power chair; Jeff in manual chair)

Announcer: And now, ladies and gentleman, the merry misfits of the Travis County Cripples Hospital are proud to present their rendition of the Crip Ward Tango.

[begins slowly, words spoken emphatically with rhythm-based pauses in between]

Maggie: Wazzup?

Adam: Frankenstein

Terri: Past life

Jeff: Amnio

Maggie: Wazzup?

Adam: Frankenstein

Terri: Past life

Jeff: Amnio

[All making head motions to tango musical interlude in background]

Maggie: [spoken slowly with glee and relish]

You know how people always ask you
"How are you? How's it going? Wazzup?"
Sometimes it's just automatic
but most people do care to some extent
They keep track of your milestones
And the unspoken expectation
is that if you are sick
or hurting
or -- god forbid -- disabled
You are going to get better, SOON
They turn off if you aren't better yet
They make suggestions for treatment
Something SOMEbody can do
so the next time they see you
your answer will be
"I'm doing better"
But what if that's never gonna be true?
Are any of you ready to hear THAT reply?

All: [singing chorus, repeated twice]

I won't get better
I won't get better
This is the best I'll ever be
And when I’m older
Yeah when I'm older
Things may be even worse for me

Adam: [spoken, upbeat and humorous]

People assume if you can't talk
Then you can't think
Or if you can't remember things fast
You must be STOOO- PID
They raise their voices
They talk to you like you are three years old
And if you get frustrated
For god's sake don't show it
'Cause nothing scares people more
Than a dummy on a rampage
Can you say "Frankenstein"?

All: [singing chorus, repeated twice]

I'm not retarded
I'm not retarded
Though that's an okay way to be
Why don't you listen
Shut up and listen
And find out what is the truth for me?

Terri:

Faith healers
Now THERE's a freak show
We crips are supposed to be close to God
or at least to remind others of how
God moves in mysterious ways
And the New Agers, they think
If you can just identify and clear out
the blockages from childhood issues
Or maybe it's a past life thing
The cancer will disintegrate
Your vision will return
They know somebody in Sausalito
who regrew a crooked spine!

All: [singing chorus]

Mind over matter
Mind over matter
Your only problem's in your head
Have you tried Jesus
Think of his suffering
Stop being hopeless, get out of bed

[said rapidly by each character, following tango beat]

Wazzup, Frankenstein, Past life, Amnio
Wazzup, Frankenstein, Past life, Amnio
Wazzup, Frankenstein, Past life, Amnio

All: [singing chorus]

Mind over matter
Mind over matter
Your only problem's in your head
Have you tried Jesus
Think of his suffering
Stop being hopeless, get out of bed

Jeff:

But the biggest tragedy of all, the worst
thing that can happen to a family
is when a child is born crippled
Right?
Was it bad genes? Was it bad choices?
Is it a lesson sent from God?
Why oh why would God let this happen
to an innocent child?
What kind of life can he expect to have?
No wife, no children, that's for sure
Some of their friends will whisper
"If they'd had amniocentesis, maybe
they could have stopped the pregnancy in time"
What do you say to things like that?

All: [singing chorus]

I am not dead yet
I am not dead yet
My only obstacles are YOU
I have a body
I have a sex life
It's time to alter your point of view

I am not dead yet
I am not dead yet
My only obstacles are YOU
I have a body
I have a sex life
It's time to alter your point of view

Maggie:

What if I never heal?

Adam:

If you can't talk, you can't think

Terri:

Have you tried Jesus?

Jeff:

What kind of life?

All: [singing chorus' last line] It's time to alter your point of view

Copyright 2004 by Maggie Jochild.

A WOMAN IS TALKING TO DEATH

(Spider Woman Rock at Canyon de Chelly, Dine Nation in Arizona)
Once a year, at least, I read in its entirety what may be my favorite poem of all time, and certainly one of the most important in the past century: "A Woman Is Talking To Death", by Judy Grahn. I've had the extraordinary opportunity to hear her read this aloud, more than once. Her work helped launch a revolution. I read it again tonight, and it's time to share it with you.

Read More...

Monday, October 8, 2007

BROAD CAST, 8 OCTOBER 2007

(Bill Barnett, my little brother, circa 1982, doing his award-winning Elvis impersonation)

I'm working on the third and final installment of "My Knees". In the interim, here's three recommends and a reader's poem to chew on.

As a follow-up to my postings on class last month, I'd like to direct your attention to an excellent post at FireDogLake by Tula Connell called Kicking Ass for the Working Class. She's commenting about books on class by Michael Zweig, and she kicks off the kicking ass by saying:

"Unbelievably, in 2004 when Al Gore dismissed George W. Bush’s plan for tax cuts as a benefit for the richest 1 percent, polls showed that 19 percent of Americans believed they were in that top 1 percent, and another 21 percent thought they would be there in the next 10 years.

Even at the height of the Depression, when a similar poll was taken, most people placed themselves in an economic status much higher than they actually were in.

So what’s the meaning of this seemingly hard-core self-delusion? According to Michael Zweig, professor of economics at the State University of New York at Stony Brook, the persistence of the American public in identifying with the wealthy means those of us in the progressive movement should stop pitting rich against poor when communicating with the rest of the world because 'when we attack “the rich” too many people think we are attacking them and their future.'"

She goes on to quote from a recent talk by Zweig on "why class is an essential starting point for more effective politics to turn back the right-wing tide that has swept across the United States with growing power for nearly 40 years." It's a great read, in particular because it doesn't demonize the rich for being rich, and because it shows how class cuts through all other oppressions (for example, race and gender). My response was: What they said.


BitchPh.D is doing a righteous job of organizing resources to help us on the web take steps to overturn Bush's veto of SCHIP, with several posts devoted to analysis and concrete suggestions -- the best source out there, as far as I can see. Read her and do what you can. If you need inspiration, here's Jon Stewart's coverage of it at The Daily Show (via Alternet), where he "describes Bush’s villainy as rivaling that of a cartoon character after he has recently refused to tax smokers in order to give poor children health care."

(Mujeres, probably in NM or AZ, from the Retter Collection)

Terrance over at The Republic of T. currently has up a post asking for folks to list their LGBT heroes in honor of GLBT History month. He says "a lot of names came to mind for me. Some of them are people who, in some small way, gave a little bit of hope to a skinny, effeminate, non-athletic, black, gay boy growing up in Augusta, GA, during the Reagan era. Some of them are people who helped that same kid hold on to (as my mama would say) 'a portion of my right mind' through college and into adulthood. All of them are people whose lives or work gave me three clear messages: You’re not alone. Everything will be alright. Anything is possible."
I posted a few of my heroes. Why don't you give him a visit and add to the list?


And, lastly, blog reader Kat sent me a poem which she's given me permission to share with ya'll. I kept thinking of a certain frat boy invader when I read it....

The Houseguest

He brought with him anger
frustration
shame
fear
the thought of HER
inching into my love's brain

He brought waves of doubt
He brought old habits

Her face (by which I mean my imagining of it)
keeps over taking me
haunting me
Is my love gonna leave cuz I'm not like her?

I wasn't like this last week.
I was doing ok
until
he brought it all in the door with him
The vampires I've worked so hard to squash
trample
smother

he took off his hat
they all flew out
with their teeth
fangs after my blood

Besides.

He doesn't brush his teeth.